picture shows how wiped out Ben was from all the
and the high fever that he had. 3/04
and April brought pneumonias for Ben. In mid-march Ben
and Steve and I were at a basketball tournament that we were
playing in and during that day Ben couldn't stop coughing.
We finally had to leave because he developed a fever and we
knew something wasn't right. He was transferred up to
the PICU at Dartmouth where he ended up staying for 10 days.
During that stay he was cultured from his trach for moraxella
which he was treated for and about half way through his stay
he got worse again. They cultured him again and this time
found pseudomonas (which is a nasty bug) and so they changed
their course of treatment. Also during this stay they
tried him on c-pap which is a type of machine that keeps your
airways open with a sort of back pressure. They were hoping
this would help with his oxygen need because they felt like
the pseudomonas was making his little airways stick in the closed
position, therefore not allowing him to oxygenate properly.
Not more than three weeks after we came home were we back in
again. This time it was the same thing - pseudomonas.
I don't think he really recovered from the first pneumonia and
so he relapsed. Again his hospital stay lasted about 10
days and this time he ended up coming home on c-pap.
Karen and a nursing student giving Ben a bath. Kayla came
to visit her brother.
You can see part of the c-pap apparatus connected
to his trach.
pink and clear tube hanging down is for suctioning.
and Stevie having their turns holding Benjamin 4/04
is Ben finally starting to feel better. 3/04